Learn about the
"Me" in Milo&Me
Hi, my name is Sophia. By 18, I have become a 501(C)(3) non-profit owner, public speaker, fierce advocate, and soon-to-be author. And it's only getting started! Join my journey! We would love to have you.
My story starts here. When I was two and a half, I was diagnosed with absence seizures. When I was 7, I had an EEG, and a dog visited me. It was my first time meeting and learning about a therapy dog. From that day onward, my mom and I made sure someone else would feel that excitement and joy with our dog.
Soo, 2 years later, Milo joined our family! Milo is a registered therapy dog through Pet Partners and, since then, has been changing people's lives. Milo is an 8-year-old Doberman Pinscher who enjoys chasing squirrels, sleeping, working with his kiddos at therapy, stealing our popcorn, ruining my mom's garden & is very interested in his new little brother- Chuck... the BIRD (@thatbirdchuck).
Even with the companionship I shared with Milo & everyone else around me, I still felt, well, alone. I was silently struggling and felt like no one else could understand me. After lots of thinking & reflecting, one night before school I thought of Milo&Me, but I was too scared to pursue it!
During the COVID-19 pandemic, we were all left with extra 'thinking" time. It hit me. Sitting at home, just passing by, wasn't cutting it for me. I didn't want to be remembered that way. I wanted to leave my mark.
I originally created Milo&Me to be a safe place for teens with epilepsy. we had a group chat for girls with epilepsy (ages 16-19) to share their experiences through our Instagram support group chat. Because of the pandemic, I had to get a bit creative. Instead of hosting "in-person events" where Milo could shine, I got the idea to make it fully online, but let's be honest, we all know he continues to shine online as well!
I started something for the girls called the "care package" program. The care package program is what I think makes Milo&Me different from others; when the girls in my chat were struggling/celebrating, I sent them a care package with custom Milo&Me merchandise that I had made for them. I had funded the care packages by attending community events where I sold "seize the day" merchandise and other fun accessories that creatively spread epilepsy awareness.
A few years later, we changed our mission while still keeping our core values. Milo&Me evolved into a virtual support group for teen girls (16-19) living on the East Coast to connect once a month. I decided that for my next step, I wanted to open the care packages up for anyone with epilepsy! not just the people in our support group. So we started the care package program, where you can nominate a friend with epilepsy to be eligible for a care package. As we evolved, I realized I wanted to do more than the support group and care packages. I really wanted to focus on educating our youth about the importance of epilepsy awareness. So we added that as well!
Epilepsy is difficult to live with, but I can tell you some of the best things I've experienced have been because of my epilepsy. In November 2022, I was the featured speaker for the Epilepsy Foundation of CT. I told my story in front of 300 people. I was also nominated through the National Epilepsy Foundation to participate in their "Teens Speak Up!" program, where 50 other epileptic teens and I were flown out throughout the states to Washington D.C., where I spoke to lawmakers about making CT a seizure-safe state & becoming a non-profit owner at 18 is probably the coolest thing ever!
Now that we've gotten all the formalities out of the way, here are some things about me...
My spirit animal is Lorelai Gilmore's caffeine addiction. You can always catch me with an iced latte in hand, and if not, you better call the authorities!
I love to travel. Next up on my bucket list is to visit Alaska, Colorado, California & Hawaii.
If I'm not at my favorite coffee shop, you can catch me working! I work at a local gift shop for kids on the autism spectrum to learn social and work skills- that's exactly what I do. Working there has taught me to fully get comfortable with getting out of my shell.
I am the baby of my family. I am 9 & 15 years apart from my older siblings.
I am an aunt of 5 kiddos, all under the age of 8.
If my AirPods are in, most songs you'll hear are Noah Kahan, Zach Bryan, or The Lumineers.
I LOVE whales, I am actually an"owner" of an Orca whale named Saturna
I actually have heterochromia, which means I have two different colored eyes!
I look forward to having you come along on my journey!
care packages that have been sent out!