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Based in Stamford, Connecticut, Milo&Me is a 501(c)(3) whose mission is to provide joy, resources, community, and education to those living with epilepsy, While also providing educational and community initiatives for our epilepsy community in Connecticut.

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happy happy happy purple day!💜💜💜

here’s the backstory on Purple Day from purpleday.org:
“Cassidy Megan created the idea of Purple Day in 2008, motivated by her own struggles with epilepsy. Cassidy’s goal is to get people talking about epilepsy in an effort to dispel myths and inform those with seizures that they are not alone. The Epilepsy Association of The Maritimes came on board in 2008 to help develop Cassidy’s idea which is now known as Purple Day.”

thank you cassidy megan for being such a strong advocate for epilepsy and changing the way for others.

there is room for everyone in the epilepsy community, no matter what anyone says. let’s welcome everyone with open arms and celebrate them. because that is truly the meaning of purple day.

#purpleday #purpleday2025 #march26purpleday #epilepsyct #epilepsyawareness #epilepsymatters #seizures #seizuressuck #epilepsywarrior #brainsurgery #chronicillnessawareness #braininjury #disabled #disabilityawarenes

president, Sophia Seeger had the honor to attend the Epilepsy Foundation of Connecticuts annual advocacy day where she spoke to legislators about bill NO. 480. A bill that would involve practitioner education of Sudden Unexpected Death in Epilepsy.

“today i advocated for all the lives loss to SUDEP. but shined a light on two extra special ladies. Olivia Allen and Molly Calvert.”

please read Sophia’s letter she sent to her legislators.

💜💜💜💜

we are super excited to announce our collaboration with @justapeacegiftshop this saturday leading to #purpleday

come support our flower stand for epilepsy! bouquets are ten dollars and come with a special poem and free lavender sachet!💜💜💜💐💐💐💐

hi everyone!!! long time no chat :) over the past few months, i’ve had our social media intern posting everything for me, so less has been on me.

this weekend, I was lucky enough to participate in the purple day panel moderated by @mamabaff. I got the opportunity to share my story and answer some questions. along with some other teen advocates (go check out their accounts to listen to their speeches!) I plan to post more of my responses over the next few weeks!

as per usual, now that the panel is over, I’ve thought of some better replies to add on to!!! hopefully, there will be more panel opportunities in the future, so I can mention them soon!

#paneldiscussion #epilepsyawareness #epilepsystamford #epilepsywarrior #seizuressuck #confrence #epilepsyconference #miloandmeepilepsy #epilepsystamford #disabilityawareness #stamfordlocal #orlandoflorida #disneyworldconference

Purple Day 2025✨✨✨

Wow!!! I truly am at a loss for words about how this event gets better every year!!! Thank you to the Anita Kaufman Foundation for being such an incredible community and support system for those (like myself) living with epilepsy. Yesterday was when lifelong friendships were made, and support was found.

Thank you to everyone who came out, introduced themselves, shared their stories, and took time to learn about our organization.

Also, an extra special thank you to @samewavetogether for introducing @1in26athlete and I together!!! Spencer is such an amazing advocate with a great mission. We are already planning for next year!

#purpledayeveryday #orlando #epilepsyflorida #miloandme #epilepsyawareness #seizuressuck #disney #disneygram #disneyconference #purpledaymarch26

We’re trading in the cold New England winter for sunshine, sand, and Mickey ears! 🌞✨ Milo&Me is thrilled to return as an exhibitor for the second year at Purple Day Orlando. Plus, our founder and president, Sophia Seeger, will be joining the Young Adult Panelist discussion! 🎤

Join us for a day filled with fun, advocacy, networking, and epilepsy awareness. 💜

To celebrate all the incredible changes since our first year as exhibitors, we’re offering some special promotions! Spend $100 or more at our table and receive a FREE Milo&Me tote! Plus, when you purchase one of our new books, your second one is on us! 📚✨

We can’t wait to see you there! #EpilepsyAwareness #MiloAndMe #Advocacy #Networking #MickeyEars #SunAndSand

“because in a world where you can be anything- be kind”

we had the most amazing volunteers last night from our local high schools come out and support epilepsy! their energy really embodied @be.like.olivia movement. making sure that each blanket was made with lots of love in honor of Olivia!

Tonight we hosted our Be Like Olivia blanket-making night!

Olivia was a vibrant girl who lit up any room she walked into. Tonight we recognized that. @warmblankethugs donated blankets to our care package program. Olivia had helped our organization so much that we knew we wanted to give back to her.

Tonight we hosted blanket making in honor of Olivia. We had the best national honors volunteers, who put all their love into these blankets! We are so thankful for all their hard work and hope to see them again soon; they were a sweet bunch! We are excited to donate half of the proceeds from tonight to @warmblankethugs.

Thank you to everyone who made tonight possible! The @be.like.olivia movement is meant to recognize the little things and find joy. Tonight was a perfect example of that.

We miss you, Olivia!!!💜💜💜💜

Today marks 1 in 26 Day, a powerful reminder that approximately one in every 26 Americans lives with epilepsy. It’s a day to spread awareness and understanding of this condition that affects so many. Let’s stand together in support, break the stigma, and advocate for better research and resources. Share this post to show your support and help educate others about epilepsy. 💜 #1in26 #EpilepsyAwareness #SupportAndEmpower

live now!!!!

go to miloandme.org to nominate 💜

package a welcome kids package with us!

care package re launch is tomorrow! nominate your loved one!

pack a premium teen care package with us!

we are super excited to open our care package launch on Tuesday!

our premium package includes a 50 dollar donation that comes with exclusive Milo & Me merchandise, premium partner items, resources, customizable note, promo codes from partner businesses, free shipping and more! you cannot nominate yourself!

Our Vision is to celebrate resilience and support the epilepsy community through thoughtful, personalized care packages.

✨ Milo & Me 2025 Care Packages are Near! ✨

In 2025, we’re reimagining our care package program to offer even more support to those living with epilepsy. Whether it’s celebrating milestones or providing comfort during challenging times, our care packages are here to make a difference. 💜

🎁 Welcome Package (Free-pictured above): Includes Milo & Me branded merchandise, resource guides, gift cards, and more! (One-time, first-time nominations only; shipping covered by the nominator.)

🎁 Standard/premium Package (Paid): Unlimited nominations (50 each time) with exclusive Milo & Me merchandise, premium partner items, and more!

🌟 Our Vision: To celebrate resilience and support the epilepsy community through thoughtful, personalized care packages.

👉 How to Request: Visit miloandme.org to nominate someone and bring a little joy to their journey. Care packages open back up Tuesday, Jan 22nd.

Let’s spread love and support, one package at a time! 💫 #MiloAndMeCare #EpilepsyAwareness #SupportAndResilience #CarePackages

We are excited to announce our care package program will be reopening January 21st with an updated look, and plan. More info to come this week.

Welcome to our community!!! We are so happy to have you here. Learn more about our organization here…

- We are proud to be Stamford, CT’s ONLY epilepsy non-profit.
- Our mission is to provide joy, resources, community, and education to those living with epilepsy, while also providing educational and community initiatives for our epilepsy community in Connecticut.
- Our services include: our care package program which provides items of support for epilepsy patients (currently revamping) and an online young woman support group.

To support Milo&Me, check the link in our bio!

Thank you @spens_jaye for creating this wonderful video for us🫶🫶

Our first fundraiser for the year is to honor our good friend, Olivia Allen— the founder of Warm Blanket Hugs who recently gained her wings this October. 👼🏻🪽

We love Olivia. We love Warm Blanket Hugs. Come join us Friday, February 7th at 6:00 located at 700 Canal St to make blankets in honor of Olivia! A portion of the proceeds from blankets from the night will go to Olivia’s organizations. The night will highlight Olivia’s life, and participants will learn about epilepsy and Milo&Me. We will learn how to make blankets with instructions provided by Warm Blanket Hugs.

Here are some things to know…

- ADMISSION IS FREE, BUT THERE IS A $15 FEE TO USE OUR SUPPLIES, OR YOU MAY BRING YOUR OWN (for free)!

- There is NO dress code, but we encourage participants to wear tie-dye in honor of Olivia... extra points if it’s purple!

- Our event is being held at Serendipity Labs and can be a bit difficult to find; there will be signage to help you find the entrance!

- There will be bites and snacks provided.

We hope you can come celebrate Olivia with us! Registration is in our bio!

#belikeolivia

happy new year! we are excited to announce that we have some changes coming in 2025 that will be under wraps for now! we can’t wait to share it with you when the time comes.

💜

2024 marks 1 full year of being a non-profit!

we are extremely grateful for every opportunity we were given this year and look forward to making more strides in our community to end the stigma surrounded by epilepsy.

Merry Christmas from our team to yours! We hope your day is filled with loved one, seizure freedom and cheer💜

🎁 Still searching for the perfect last-minute gift? Look no further! 🎄✨ Donating to Milo&Me is not only quick and easy, but it also makes a lasting impact of those living with epilepsy. Your generous contribution helps us continue our mission to provide joy, resources, community, and education to those living with epilepsy. While also providing educational and community initiatives for our epilepsy community in Connecticut.🌟 Give the gift of hope and joy this holiday season by donating to Milo&Me. Let’s make a difference together!

We have officially sent out our last care packages of 2024 and are excited for brave kiddos around the USA to receive them! Going into 2025, we want to improve our care package program for all. Our team is excited to share our plans in the new year when everything is finalized and ready to go live.

We appreciate your patience and support as we do what’s best for our organization to move forward!

As Epilepsy Awareness Month comes to a close, we reflect on an incredible month filled with hope, strength, and community. From inspiring events to heartwarming stories shared by families, we’ve been reminded of the power of support and unity in the epilepsy journey. 💜

Milo&Me is beyond honored to be apart of your story, and we’re grateful for every opportunity to raise awareness and advocate for those affected by epilepsy. Together, we’re making a difference, one step at a time.

#EpilepsyAwareness #CommunityStrength #MiloAndMe #EndEpilepsy #StrongerTogether #PurpleForEpilepsy

#stamfordkindessproject 💛

Thanksgiving is over, meaning it’s basically Christmas. Our little elves today went to spread some cheer to the patients at Cohens Children’s Specialty Center at the Stamford Tully Center. Cohens is the neurology center where many kids with epilepsy spend their time (we know it well because our childhoods were spent there too!). We decorated the neurology office with encouraging messages for epilepsy patients, and provided messages for patients to take home as well!

My heart is so full to be given the opportunity to read our book Milo&Me: Learn about Absence Epilepsy at my former elementary school's Purple Day fundraiser for Milo&Me! The fundraiser was organized by my former third-grade teacher, Mrs Bryant, and my good friend (who is also a teacher), Mrs. Calorossi.

When you have a child, or you have epilepsy, you start to realize it does take a village. Your village is still a village even when you leave. It’s obviously been a long time since I went to elementary school, but being welcomed back with open and proud arms is the most heartwarming thing.

So here’s to the teachers who never gave up on their tough students, the students who couldn’t read at grade level, the students who needed extra help on understanding nickels and needed help finding their voice. Sometimes, they end up founding a non-profit and writing a children’s book.

50% of kids with epilepsy, according to Massachusetts General Hospital, struggle with learning disabilities. Be like my amazing teachers (some who are not pictured as well!) who make kiddos with different abilities feel seen, adored, and listened to.

THANK YOU STARK💙⭐️S FOR SUPPORTING EPILEPSY!

As the holiday season approaches, we know many people will nominate their loved ones for a care package since epilepsy, unfortunately, takes no days off.

Since we are a small non-profit run entirely by volunteers, we will have no one available to send our care packages later in the month. We ask you to nominate your loved ones as soon as possible! the LAST DAY to nominate a loved one for a care package is DECEMBER 9TH!

We understand this may be frustrating to some, and trust us. We wish we were big enough to accommodate! We love our organization and supporters, that stepping back for Christmas break is difficult! So, we will be talking this time to hug our loved ones a little extra and return in the new year extra rejuvenated so you may all get the best version of us!

Nominations on the website will be closed starting December 10th. See you in the new year!

Xoxo,
Milo&Me

our pottery night fundraiser for epilepsy was a success! thank you @luckypennypottery for hosting us and @dimarepastry for donating desserts for sip and paint your own planter! thank you to everyone who came. we appreciate all of you!💜

our pottery fundraiser with lucky penny was a success! thank you to everyone who came out to support epilepsy.💜

highlights from yesterday! more pictures to come!

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