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Based in Stamford, Connecticut, Milo&Me is a 501(c)(3) whose mission is to provide joy, resources, community, and education to those living with epilepsy, While also providing educational and community initiatives for our epilepsy community in Connecticut.

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We are excited to announce our care package program will be reopening January 21st with an updated look, and plan. More info to come this week.

Welcome to our community!!! We are so happy to have you here. Learn more about our organization here…

- We are proud to be Stamford, CT’s ONLY epilepsy non-profit.
- Our mission is to provide joy, resources, community, and education to those living with epilepsy, while also providing educational and community initiatives for our epilepsy community in Connecticut.
- Our services include: our care package program which provides items of support for epilepsy patients (currently revamping) and an online young woman support group.

To support Milo&Me, check the link in our bio!

Thank you @spens_jaye for creating this wonderful video for us🫶🫶

Our first fundraiser for the year is to honor our good friend, Olivia Allen— the founder of Warm Blanket Hugs who recently gained her wings this October. 👼🏻🪽

We love Olivia. We love Warm Blanket Hugs. Come join us Friday, February 7th at 6:00 located at 700 Canal St to make blankets in honor of Olivia! A portion of the proceeds from blankets from the night will go to Olivia’s organizations. The night will highlight Olivia’s life, and participants will learn about epilepsy and Milo&Me. We will learn how to make blankets with instructions provided by Warm Blanket Hugs.

Here are some things to know…

- ADMISSION IS FREE, BUT THERE IS A $15 FEE TO USE OUR SUPPLIES, OR YOU MAY BRING YOUR OWN (for free)!

- There is NO dress code, but we encourage participants to wear tie-dye in honor of Olivia... extra points if it’s purple!

- Our event is being held at Serendipity Labs and can be a bit difficult to find; there will be signage to help you find the entrance!

- There will be bites and snacks provided.

We hope you can come celebrate Olivia with us! Registration is in our bio!

#belikeolivia

happy new year! we are excited to announce that we have some changes coming in 2025 that will be under wraps for now! we can’t wait to share it with you when the time comes.

💜

2024 marks 1 full year of being a non-profit!

we are extremely grateful for every opportunity we were given this year and look forward to making more strides in our community to end the stigma surrounded by epilepsy.

Merry Christmas from our team to yours! We hope your day is filled with loved one, seizure freedom and cheer💜

🎁 Still searching for the perfect last-minute gift? Look no further! 🎄✨ Donating to Milo&Me is not only quick and easy, but it also makes a lasting impact of those living with epilepsy. Your generous contribution helps us continue our mission to provide joy, resources, community, and education to those living with epilepsy. While also providing educational and community initiatives for our epilepsy community in Connecticut.🌟 Give the gift of hope and joy this holiday season by donating to Milo&Me. Let’s make a difference together!

We have officially sent out our last care packages of 2024 and are excited for brave kiddos around the USA to receive them! Going into 2025, we want to improve our care package program for all. Our team is excited to share our plans in the new year when everything is finalized and ready to go live.

We appreciate your patience and support as we do what’s best for our organization to move forward!

As Epilepsy Awareness Month comes to a close, we reflect on an incredible month filled with hope, strength, and community. From inspiring events to heartwarming stories shared by families, we’ve been reminded of the power of support and unity in the epilepsy journey. 💜

Milo&Me is beyond honored to be apart of your story, and we’re grateful for every opportunity to raise awareness and advocate for those affected by epilepsy. Together, we’re making a difference, one step at a time.

#EpilepsyAwareness #CommunityStrength #MiloAndMe #EndEpilepsy #StrongerTogether #PurpleForEpilepsy

#stamfordkindessproject 💛

Thanksgiving is over, meaning it’s basically Christmas. Our little elves today went to spread some cheer to the patients at Cohens Children’s Specialty Center at the Stamford Tully Center. Cohens is the neurology center where many kids with epilepsy spend their time (we know it well because our childhoods were spent there too!). We decorated the neurology office with encouraging messages for epilepsy patients, and provided messages for patients to take home as well!

My heart is so full to be given the opportunity to read our book Milo&Me: Learn about Absence Epilepsy at my former elementary school's Purple Day fundraiser for Milo&Me! The fundraiser was organized by my former third-grade teacher, Mrs Bryant, and my good friend (who is also a teacher), Mrs. Calorossi.

When you have a child, or you have epilepsy, you start to realize it does take a village. Your village is still a village even when you leave. It’s obviously been a long time since I went to elementary school, but being welcomed back with open and proud arms is the most heartwarming thing.

So here’s to the teachers who never gave up on their tough students, the students who couldn’t read at grade level, the students who needed extra help on understanding nickels and needed help finding their voice. Sometimes, they end up founding a non-profit and writing a children’s book.

50% of kids with epilepsy, according to Massachusetts General Hospital, struggle with learning disabilities. Be like my amazing teachers (some who are not pictured as well!) who make kiddos with different abilities feel seen, adored, and listened to.

THANK YOU STARK💙⭐️S FOR SUPPORTING EPILEPSY!

As the holiday season approaches, we know many people will nominate their loved ones for a care package since epilepsy, unfortunately, takes no days off.

Since we are a small non-profit run entirely by volunteers, we will have no one available to send our care packages later in the month. We ask you to nominate your loved ones as soon as possible! the LAST DAY to nominate a loved one for a care package is DECEMBER 9TH!

We understand this may be frustrating to some, and trust us. We wish we were big enough to accommodate! We love our organization and supporters, that stepping back for Christmas break is difficult! So, we will be talking this time to hug our loved ones a little extra and return in the new year extra rejuvenated so you may all get the best version of us!

Nominations on the website will be closed starting December 10th. See you in the new year!

Xoxo,
Milo&Me

our pottery night fundraiser for epilepsy was a success! thank you @luckypennypottery for hosting us and @dimarepastry for donating desserts for sip and paint your own planter! thank you to everyone who came. we appreciate all of you!💜

our pottery fundraiser with lucky penny was a success! thank you to everyone who came out to support epilepsy.💜

highlights from yesterday! more pictures to come!

President, Sophia Seegers proclamation acceptance speech on the importance of epilepsy awareness. 💜💜💜

Mayor Simmons proclaiming November as Epilepsy Awareness month!

Introducing… our speaker of the hour!!! We are so very proud of the fantastic job Violet did by speaking today. She is so brave for sharing her story at only 9 years old!!!💜💜💜

some of todays speakers! we are so proud of @missctteenvol @jaidalynn_alicea for sharing her story, and changing the narrative of epilepsy. 💜✨

Today, our organization received a proclamation from @mayorcarolinesimmons, who recognized November as Epilepsy Awareness Month and raised our epilepsy awareness flag!

As an organization mainly run by people with epilepsy and their loved ones, we are incredibly grateful to be given the opportunity to spread our message and put on (from our knowledge) the first epilepsy

Let’s come together to support and raise awareness for epilepsy. Swipe to find 5 impactful ways you can help…

#epilepsy #epilepsyawareness #epilepyawarenessmonth #november #makenovemberpurpleforepilepsy #howtosupport #community #stamfordct #stamfordevents

November is the beginning of Epilepsy Awareness Month!

While we all wish we didn’t have to recognize epilepsy month- because epilepsy shouldn’t exist this month is a month to embrace differences! Be easy on yourself (and loved ones), and recognize the constant strength, endurance, and bravery people with epilepsy live through while dealing with a big stigma.

💜💜💜💜

We are so thrilled to get the opportunity to read our book at the @ferglibrary Harry Bennett branch this weekend, to kickstart epilepsy awareness month! Please join us November 2nd at 2:00 at the Harry Bennett Branch to learn more about epilepsy! Registration is available via link in bio.

We are super excited to announce our collaboration with @luckypennypottery for epilepsy awareness month. Decorate your own purple planter for epilepsy!

Join us on November 15th, at 7:00 at Lucky Penny Pottery! Learn about epilepsy, while letting your creativity unleash! Tickets are available in the link in our bio.

we are BIG HOCKEY FANS OVER HERE! Join us as we celebrate the end of epilepsy awareness month in style with the @ahlislanders .

Help us sell 100 tickets (link in bio)… 3 dollars from each purchase goes to Milo&Me. Seats are center ice & come with a free hat. ALL raffle proceeds go to Milo&Me.

We are so thrilled to be recognized by our community, and to meet all of you at the game! GO ISLANDERS!

After lots of preparation, we are very excited to announce our collaboration with @cityofstamfordct to acknowledge epilepsy awareness month, on November 13th. Our organization will be receiving a proclamation, there will be speakers, a flag raising, bake sale, resources to learn more about epilepsy & milo&me and so much more! You can see the display of purple pumpkins our SPS students have decorated, along with purple awareness ribbons (decorated by SPS students as well).

We hope we can share this moment with all of you and would appreciate your support to attend! Wear your purple! Even if you don't have a connection to epilepsy, showing up to support those in our community moves mountains!

#endepilepsy #miloandmeepilepsy #epilepsyct #epileosystamford #nonprofitsct #communityeventsct #seizures #stamfordlocal #connecticutevents #supportepilepsy #volunteersct #stamfordct

these cuties did an amazing job on their pumpkins today! we are so proud of their work and excitement to spread epilepsy awareness!💜

some fabulous purple pumpkins decorated by the kiddos at school!!!💜🎃

President, Sophia Seeger and Milo had such a blast along with Stamford Public Schools kindergarten and 5th grade class today! Students learned about epilepsy, by reading Sophia’s book “Milo&Me Learn about Absence Epilepsy” and why painting your pumpkin purple is a kind thing to do! We are so proud of everyone’s work- they did phenomenal!

thank you to our sponsors and amazon wishlist donors!

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